almost 2 years ago Presley started having (or James and i noticed) these things that sort of looked like panic attacks..
Over time they have evolved and become very distinct.
About 8 months ago James and I both said that they have almost started looking somewhat like seizures. We brought it up to the doctor and like so many doctors involving Presley over so many different things in the past, it was brushed off. They pretty much told us that if they didnt see it happen then they couldnt tell us what it was..
Well about a week and a half ago his doctor FINALLY saw it! She agreed it did look like a seizure so she put in a referral for a neurology consult. While waiting for the confirmation to arrive in the mail we went to the pediatric neuropsychologist (our Asperger doctor) where it actually happened 7 times in 25 minutes, right in front of her.. She immediately got on the phone, made a million calls and got us into see THE pediatric neurologist the next day (this morning)..
Pres had an EEG done (which he handled amazingly!) during which he had 3 separate and distinct seizures..
An hour later im sitting in the office of a guy with rainbow shoes when i heard another one of those cold, scary and unforgiving medical words.. Epilepsy
Presley has epilepsy..
He will start drugs for it tomorrow evening that he will continue to take until he has been seizure free for two years..
Im feeling rather numb right now.. But as the day goes by the panic and sadness i can tell are seeping in.. I could really use James right now..
okay well the smaller boys are up from naps now i so i guess i better get back to pretending nothing is wrong..
Happy faces!
ill write more about this when i have the time and the words..
I really don't know how you deal without your husband! i can't even figure out the stress of finding a babysitter without calling or texting mine every hour! Amazed by you. your family is in my thoughts and prayers!
ReplyDeleteyou are someone to admire brandy and you have the best kids. chin up, shoulders back and just keep that precious little boy happy. you are doing a great job, and james will be there soon. hugs!
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