After two very intense days (and two days of missed school) Presley went back to class today with a few new words in his vocabulary.. It was hard to let him go but i managed to make it back to the truck before i started crying and almost all the way back to our house before i started sobbing.. God i wish i could stop doing that. I hate crying. Its just a reminder that im not as tough as i think i am. It seems as though every few minutes some new and heartbreaking thing that im just gonna deal with, pops into my head and i cant make it go away. Last night i cried for almost an hour because of a piece of paper.. Not just any piece of paper but one that was in the millions of pieces of paper about epilepsy that ive gotten in the past two days. Not real sure why this particular piece of paper hurt so bad. Well i guess i do, its one no parent really wants to every see. It was information on how important it is that i get Presley some type of medical ID bracelet and it listed off a few places i could purchase one. Up until that moment in my life i could always kind of quietly deal with my heartbreak over that lot my son was handed in life because he didnt look any different than any other kid.. Once i put a bracelet on him that changes.. Now he looks different that other kids. Now people that dont even know him, know hes sick..
God i hate this.
The last 48 hours have been about the darkest of my entire life.. Im trying to smile but really i am sad, scared and very, very alone.. James and I going through this away from each other has sucked.. We could really use our Daddy Rabbit right now.. Or i could anyway. Poor Presley is so used to seeing new specialist and having different test done and learning medical words that this is absolutely not even a thing for him..
Okay well i gotta get out of here and head to the pharmacy.. Something called Depakote is supposed to just turn the seizures off.. So were gonna try it starting tomorrow..
I know you probably don't want to hear this but my mom is on depakote and it works great. Does more bad than good another thing you may want to look into is an anti anxiety medicine my mom takes depakote and and klonopin and very rarely has a seizure....just trying to help out baby doll....
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